Mom went back to see her surgeon today to see why the nurses were having so many problems with her chemo port. It seems to have broke loose and got flipped around. She now has to go back in on Monday and have the procedure done all over again. This is the kind of stuff that starts making you discouraged. She wants to fight the battle.....but things aren't working out properly. I hate seeing her in such misery. It is breaking my heart. She can't eat right, she is weak. I haven't cried in a few days...I was happy about that. Today....I'm crying. I want so badly for things to get underway and start improving for my mom. I want to be able to sleep at night. I fear that I am going to end up with insomnia...afraid to fall asleep because if I fall asleep....my phone will be ringing in the middle of the night with an emergency.
My dad is going to have to go for a 3-day sleep study to see if perhaps sleep apnea (spelling?) could be the cause of his "episodes" because they have only happened while he is sleeping. The neurologist is calling them episodes and not seizures. They did a brain scan on him and everything looked fine, which my mother disagrees with. lol
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Praying for you and your family. Hang in there.
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